SpeakUP Project: Advancing Health Equity for People Living with HIV

After five years of being an essential resource center for thousands of people navigating the Affordable Care Act (ACA), HIVHealthReform.org (HHR) has transitioned into the newly expanded SpeakUP project.

SpeakUP is a web-based information hub that identifies health equity issues, related to the Affordable Care Act, that are facing people living with HIV, providers and advocates across the nation. The project seeks resolutions to these issues on a personal scale and beyond through education, advocacy and policy change. The project will focus on health equity issues raised from the emergence of the ACA and health care reform directly impacting people living with HIV and/or hepatitis C (HCV).

SpeakUP will identify issues that need to be addressed, bring them to the attention of state and federal regulators and policymakers, advocate for change, and report back to the community. Beyond helping individuals, information collected through this project will ultimately serve the entire HIV community, as it will help educate state and federal officials as they review and refine key aspects of the ACA in coming years.

Further, SpeakUP will highlight a variety of important issues in its podcast series. The series kicked off with the Center for Health Law and Policy Innovation (CHLPI) discussing the process of flagging HIV-discriminate insurers denying or limiting access coverage of HIV and hepatitis C (HCV) drugs with their state partners. In the podcast, CHLPI shares how to utilize SpeakUP’s reporting mechanism to file formal joint complaints with the U.S. Department of Health and Human Services’ Office for Civil Rights (OCR) against these insurers for discriminatory plan designs. Listen to the podcast and click here for more information on the OCR complaints

Visit the SpeakUP website, Facebook, and Twitter to learn more about the project.

Please note: The HHR website and social media will no longer be updated, and any archived information may be out-of-date. Access and utilize this information housed in these digital sites with care.

About Kim Rodgers

Kim Rodgers serves as a Communications Specialist at NACCHO. Her work includes promoting local health departments' best practices, as well as partner tools and resources, in infectious disease and preparedness through NACCHO's communications channels, storytelling, and outreach to various audiences.

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